First let me apologize for not keeping up on this like I could have. Still struggling with putting it out there. Maybe it's because I have something important to say and I am demeaning it in my head. Which is wrong because then I am essentially robbing someone else of a blessing. Okay anyhow.
My diagnosis...No change. I am still Rhonda McAnulty patient number, dob, NO EVIDENCE of DISEASE!
Treatment: continues on Herceptin (maintenance drug) and ??? slipped my slippery brain (another maintenance drug. I will continue on these two drugs every three weeks in Anchorage until as early as November and as late as January.
Later Treatment: we'll cross that bridge
Update on previous treatment: I was on Radiation that lasted about 7-8 weeks. This ended about 4 weeks ago. The radiation caused very painful burns, itching, peeling, oozing, yeah, all the fun stuff. But I lived and am still here smiling and chatting away a storm. I still am having some of the burns itch, peel and burn, but I have a follow up next Monday :)
Now the maintenance drugs, I had an infusion yesterday and the meds caused some major itching. A minute or two later I felt a heaviness on my chest, I knew there was no pain. I remember thinking of my son and a few years ago he was given an anti-anxiety drug. As he was getting woozy he said "Mom I feel like my stomach is floating." This is now how I would describe how I felt yesterday. Except instead of floating I felt pressure or a heaviness. This is my second round with this new drug. It was scary for a minute, but I knew I was in good hands. Bill was there holding my hand. I was given antihistamines and then crashed to sleep. I started the infusion again, I had almost finished all of it the first time. Fell asleep and woke again to itching. More meds, more hand holding and more drowsiness. So as I think back I wasn't that scared. Suppressed emotion? I felt like I was going to be fine and in a few hours I would be on a plane, flying home to my kids. Oh, and hungry. I was hungry as all get up!
So today. It's according to school kids on summer break everywhere, still morning. I have had my morning coffee and devotionals. My new challenges? I have recently spoken about wanting more from my spiritual life. I start today with prayers that I may become more a willing spirit, an obedient child of God. I want what God wants for my life. Be that a wife, mother, blogger or cupcake extraordinaire!
I am so blessed to go to Anchorage every three weeks. I am so blessed to walk around the hospital passing out smiles and prayers, words of encouragement. I am so blessed that I have been given this opportunity. My prayer now is to be obedient at home as obedient as when I walk out this door. I am loved and free to love. Love you, love me, love you, love me.
PS a huge shout out to Wayne, Millie, Rona and Eric/Danny, the WONDERFUL nursing staff at ANMC Infusion room. I wish everyone could meet these wonderful people, but maybe not so much in the infusion room. Take my word for it, they ARE the creme De la creme!
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